An Irish mum whose son suffers from a rare genetic disorder has accused pharmaceutical companies of refusing to invest in a cure.
One-year-old Hagan Kavanagh has cystinosis which over time will crystallise his cells and destroy his organs.
There's only a one in a million chance of both parents transferring the condition to their child and there are currently just 8 patients with it in the whole country.
Hagan's mum Donna has launched a fund raising effort through cystinosis Ireland because she says medical firms are unwilling to help:
To donate 4 Euro just text MINI to 50300
